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My Battle with Mesothelioma

As we are closing the “CANCER” awareness month, the Gugu Dlamini Foundation would like to share with you, our friends and partners, a story of a courageous woman who has battled one of the much forgotten and/or unknown type of cancer.

My story of illness and cancer is similar to the struggles of others: I was diagnosed at 50 with the devastating type of cancer called mesothelioma. I am now very sick and fighting for treatment and for my life. I am limited and unable to enjoy the activities I once did. Just breathing is difficult for me now, and I can blame all this on exposure to asbestos.

My message is an important one, and I want to educate people about the risks of exposure to asbestos. I want other people to know that prevention is important in preventing mesothelioma and that early detection and diagnosis is crucial for effective treatment. Avoid asbestos, but if you have been exposed, get diagnosed and treated as soon as possible.

I grew up in the small town of Williamson, West Virginia. I worked in demolition, taking down buildings with tools and with my own hands. It was hard work and in doing it I was exposed to asbestos-laden dust. Disrupting asbestos in older buildings is one of the top ways in which people are exposed to asbestos fibers.

After that job I moved on to others, including working on cars. I tore out and replaced hood liners and made repairs to cars including working with clutches and brakes. All of these parts contained asbestos and without knowing the dangers or how to protect myself, I was again, exposed to asbestos fibers.

Asbestos was once used extensively in so many applications, but especially in the construction of buildings. The real dangers of inhaling or accidentally consuming this mineral were not known until the 1970s when regulations were finally put into place. Because I never knew of the risks, I worked for years around asbestos and now I have mesothelioma.

I am over 50 now and living with the consequences, as are many other older Americans. Mesothelioma sneaks up on you many years after asbestos exposure. I now have a hard time breathing and even walking. I spend much of my time in bed, unable to do normal daily tasks. My symptoms include chest pains, a terrible cough, and shortness of breath.

Treatment is limited for me. Treatment for mesothelioma is already difficult, but my cancer has spread to the lymph nodes and so surgery is not an option. I am hoping to undergo chemotherapy, which may shrink the tumors and bring me some relief, but a cure for this disease just isn’t possible.

I hope that by sharing my story as far and as wide as I can, that I will reach people who may still be able to take steps to prevent mesothelioma or to get screened and treated early. If there is any chance you think you may have been exposed to asbestos, do not wait to talk to your doctor about it.

Monitor yourself for symptoms and get screening tests to catch this terrible disease early. My story should help others avoid a similar fate.

Byguguadmin

Opening of Gugu Dlamini Memorial Educational House

IMG_4430In In preparation to the 21st International AIDS Conference to be held in Durban, South Africa… The Gugu Dlamini Foundation in partnership with the eThekwini Municipality, the office of the Premier of KwaZulu Natal and the KZN Department of Health  officially hosted the opening of Gugu Dlamini Memorial Educational House in Ntunzuma, Durban on Tuesday 12th of July 2016. Also a monument stone was unveiled in memory of the late Gugu Dlamini at the place where she was found after having been attacked. The event was held in Ntunzuma north of DUran, at the home of the Gugu Dlamini Foundation.

A number of international visitors and locals came to witness this historical event. Mandisa Dlamini the daughter of the late Gugu Dalmini and founder of the Gugu Dlamini Foundation gave memorial lecture on the life of Gugu.

The Gugu Dlamini Foundation would like to kindly thank all the partners and visitors for honoring this historical day. You can catch up with Mandisa Dlamini and the gugu Dlamini FOundation team at the International AIDS Conference in Durban this coming week (17 to 22 July 2016)

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